Chinese Journal of Evidence-Based Pediatrics ›› 2023, Vol. 18 ›› Issue (3): 221-225.DOI: 10.3969/j.issn.1673-5501.2023.03.011

Previous Articles     Next Articles

Literature on matching health and healthrelated information with international classification of functioning, disability and health for children and youth : A scoping review

YIN Huanhuan1a,3, WANG Huishan1b,3, SHEN Xiushu1a, XU Lei1a, XU Yetao1a, ZHAI Chun1a, ZHU Mo1a, LIN Weize2, LI Hui1a, SHI Wei1a#br#   

  1. 1 Children's Hospital of Fudan University, Shanghai 201102, China; a Rehabilitation Department; b Center for Clinical Guideline Development and Evaluation, Fudan University GRADE center; 2 Children's Hospital of Fudan University at Xiamen, Xiamen, 361006, China; 3 Co-author

  • Received:2023-04-26 Revised:2023-07-11 Online:2023-06-25 Published:2023-06-25
  • Contact: LI Hui, email:huiliqingyi@163.com; SHI Wei, email: shiweixiyi@163.com

Abstract: Background:Matching health and health-related information with International Classification of Functioning, Disability and Health, known more commonly as ICF can be helpful to describe and compare quantitative data, qualitative research results and patient report results. However, there are few literature about children and adolescents in this field. Objective:To provide support and suggestions for Clinical Practice Guidelines for Children and Adolescents with Cerebral Palsy (CANDLEP) by identifying the location, link, code of health and health-related information about children and adolescents in ICF for children and youth (ICF-CY) . Design:Scoping review. Methods:Literature was searched by using the keywords of "ICF" and "relate" in English databases of PubMed, Embase(Ovid), Cochrane and Chinese databases of SinoMed, CNKI and WanFang. Literature features were extracted from those matching health and health-related information with ICF-CY by six people with Fleiss kappa of 0.80. Main outcome measures:The matched content, the quality control of matching, presentation of matched results, the ICF-CY code distribution of matched cerebral palsy-related literature. Results:A total of 136 articles were enrolled in this scoping review. Among 110 articles focusing on specific populations, 31 were related to cerebral palsy; 107 used matching rules to promote quality control; 84 adopted the matching rules proposed by Cieza et al., among which 73 used the 2005 edition; and 93 reported the matching reliability. The matched content involved evaluation, intervention objectives, intervention methods, and outcome assessment. In 71 articles evaluation tools were matched with ICF-CY code. Frequency, breadth and density were main indicators for matched results report. Matched codes for cerebral palsy were mainly activities and participation. Conclusion:Matching health and health-related information about children and adolescents with ICF-CY is an important means to promote the clinical implementation of ICF-CY. Cerebral palsy has received the most attention within included articles focusing on population, which provides valuable evidence for the elaboration of ICF-CY elements in CANDLEP development.

Key words: Children, Adolescents, Cerebral palsy, ICF-CY, Relate, Scoping review